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The Jeffrey Journey
by Helen Baldwin
In May, 1997, Randy and Helen Baldwin eagerly welcomed their third child, Jeffrey, as did his older siblings, Matthew and Katie. Jeffrey's arrival, unplanned but greatly anticipated, sparked a few adjustments in this family long removed from diaper duty, but Jeffrey was obviously a special gift.
Eight weeks later after Jeffrey's arrival, life took a completely unexpected downward spiral into the depths of shock and despair when Jeffrey was diagnosed with Spinal Muscular Atrophy (SMA), a rare, progressive genetic neuromuscular disease with deadly ramifications. The neurologist handed over the utterly devastating news that Jeffrey had a severe case of the most destructive form without a morsel of hope that anything could be done to thwart the effects of the killer disease.
Faced with the nightmare that their baby was expected to die within two years and that there was no treatment or cure, Randy and Helen took their faith in God to a higher level and embarked on a quest to defy SMA and its stranglehold on their precious baby's life. They sought the expertise of alternative practitioners and other SMA families, relentlessly relying on prayers for Jeffrey's health and comfort, and for strength, courage, and wisdom for themselves and their family.
The Jeffrey Journey, based on Helen's notes, is the story of how one family - with family and friends, prayer, and God's grace - rose to the challenge of caring for a dying child as they also realized the countless blessings left by their angel.
Dreams for Jeffrey, a CD of original lullabies composed and performed by Helen's mother, JoAnn Derden, is available here.
The Jeffrey Journey © Helen Baldwin 2009
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